ELIXIR has produced a short paper outlining the potential impact the European Parliament's proposed amendements to the new EU Data Protection Regulation. If the proposed ammendments on informed consent are introduced in the final Regulation, the impact on medical science would be grave and Europe's capacity to deliver world-leading science would be severely undermined.
ELIXIR's position on the impact of the EU Data Protection Regulation
The European Data in Health Research Alliance is active in raising awareness with policy-makers of the potential concequences.
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